National Conference on Engaging Patients, Families and Communities in all Phases of Translational Research to Improve Health
Thursday and Friday, August 21-22, 2014
Bethesda North Marriott Hotel and Conference Center
5701 Marinelli Road
Bethesda, MD 20852
2014 Conference summary (PDF)
Final agenda Posted: 8/13/2014
Keynote Speaker: Judith Auerbach, PhD, Consultant and Adjunct Professor, School of Medicine, UCSF
Topic: Methods to ensure engagement of patients, families, and communities throughout the research continuum
- To present models demonstrating community engagement in each phase of translational research to improve health
- To identify methods and metrics for assessing the success of community-engaged research in each phase of research
- To determine best practices for sustaining community-engaged research in all phases of research
To present and compare perspectives and examples of methods of engagement in research that include individuals, including patients and families, to community organizations and disease advocates, as well as clinicians and other health professionals.
Attendees for this conference will include community groups, patient advocacy groups, funders and foundations that are interested in research design and outcomes, and the researchers who presently work with these groups or wish to do so in the future.
Registration Fee: $125
Registration Cancellation Policy: A $50.00 administrative fee will be assessed on all refunds prior to July 31, 2014. After that date no refunds can be made. Notice of cancellation must be received in writing to Ann Lane via email at email@example.com.
Posters: For a list of Posters that were presented during the conference, visit the Poster Presentations page.
Funding for this conference was made possible (in part) by grant U13TR000184 from the National Center for Advancing Translational Sciences (NCATS). The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services; nor does mention by trade names, commercial practices, or organizations imply endorsement by the U.S. Government.